Search found 1820 matches

by NF52
Wed Dec 06, 2017 4:54 pm
Forum: Science and Research
Topic: Retinal scan. Would you get it?
Replies: 11
Views: 4275

Re: Retinal scan. Would you get it?

Hi cwicker, Good news: You definitely won't get a diagnosis of Alzheimer's from this eye scan, or even from a PET scan if you were to have it. Those are simply biomarkers of what is thought--but not yet conclusively proven--to be early biomarkers of preclinical disease. In the same way that everyone...
by NF52
Tue Dec 05, 2017 3:21 pm
Forum: ApoE4.Info, Inc.
Topic: Alzheimer's and "Death with Dignity"
Replies: 30
Views: 21290

Re: Alzheimer's and "Death with Dignity"

Susan, I am so sorry that your dad had to experience such grief, fear and confusion in the last year of his life. And just as sorry that your family lost both parents in such a short time. You are right; context is everything. Each of us, I think, will try to plan for a life that will continue to ha...
by NF52
Tue Dec 05, 2017 3:10 pm
Forum: Getting Started
Topic: Welcome!!!
Replies: 331
Views: 144124

Re: Welcome!!!

Hi Brenita! I am sure you'll get a welcome from a few people, including members of the Support Team, but wanted to send one from someone of a similar age (65) and similar family (mother, her 4 sisters, paternal grandmother--not til age 93) all died with, if not from, dementia. I discovered that I wa...
by NF52
Mon Dec 04, 2017 6:11 am
Forum: ApoE4.Info, Inc.
Topic: Alzheimer's and "Death with Dignity"
Replies: 30
Views: 21290

Re: Alzheimer's and "Death with Dignity"

Nords, Thank you for your post, which brings your dad to life. I'm glad he was able to be both a consultant and a mayor in his last years. I strongly believe that the value of being a "person first" with disability, whether dementia, chronic illness or developmental disability, needs to be...
by NF52
Thu Nov 30, 2017 6:49 pm
Forum: Science and Research
Topic: CAD106 and CNP520
Replies: 134
Views: 51049

Re: CAD106 and CNP520

Hi DDorans! A warm welcome! I know the feeling you spoke of: Am trying to decide if I am going to participate in the study. I did talk to the study doctor at length but still have more questions that I will need answered. Not sure my husband can take the time to be a study partner. They said it woul...
by NF52
Wed Nov 22, 2017 12:36 am
Forum: Prevention and Treatment
Topic: Brain Training Study
Replies: 36
Views: 11178

Re: Brain Training Study

Like Searcher, I also followed the link to the study, While I wish I had Searcher's expertise with the statistical analysis, I also noted the following methodological issues with this study: It appears that fully 50% of the original participants dropped out, some after one "training" sessi...
by NF52
Wed Nov 22, 2017 12:09 am
Forum: Prevention and Treatment
Topic: Generation One trial
Replies: 3
Views: 1519

Re: Generation One trial

Hi Nounie1, I am on the Generations I trial and at least three other people on this site are also. As JulieG noted, you can follow the thread and see some of the comments we posted as we were going through the screening and early baseline. Since the study started about a year ago and is enrolling pe...
by NF52
Tue Nov 21, 2017 6:00 pm
Forum: Our Stories
Topic: I’m a newbie looking for info
Replies: 4
Views: 1692

Re: I’m a newbie looking for info

I am wondering if anyone else is participating in a study, and if so how are they managing the testing and exam protocols? They seem very extensive and are scheduled every three months. I am concerned about the stress involved. Also, a question I am sure will seem naive, but should I begin to see a...
by NF52
Sun Nov 12, 2017 10:06 am
Forum: Our Stories
Topic: Hello, new, very new, found out 4/4 today
Replies: 4
Views: 1592

Re: Hello, new, very new, found out 4/4 today

Eva, A quick addition: my lipids too looked like "crap". Numbers of LDL-P in the stratosphere, and Lp(a) beyond the chart of "high risk" of coronary artery disease. So I recently paid for a coronary artery calcium scan, due to concern that maybe my family history of stroke and he...
by NF52
Sun Nov 12, 2017 9:59 am
Forum: Our Stories
Topic: Hello, new, very new, found out 4/4 today
Replies: 4
Views: 1592

Re: Hello, new, very new, found out 4/4 today

Welcome Eva, I want to offer support as someone who also is a 4/4, found out accidentally at almost age 62, and is now 65 and feeling much more confident about my chances of having many more years of healthy, happy living. I agree with Jan's assessment of your cognitive reserve. One community-based ...