Search found 2152 matches
- Thu Jan 30, 2025 1:04 pm
- Forum: Our Stories
- Topic: Doomscrolling
- Replies: 3
- Views: 5871
Re: Doomscrolling
I try to convince myself that learning my APOE status (I’m a 4/4) was a blessing in disguise, but then I come across articles like this: https://www.cnn.com/2022/04/05/health/new-alzheimers-genes-wellness/index.html, and I feel like I’m doomed. This particular quote scares me: “Lifestyle factors su...
- Fri Jan 24, 2025 2:03 pm
- Forum: Getting Started
- Topic: Welcome!!!
- Replies: 352
- Views: 437938
Re: Welcome!!!
Thanks for the reply and the welcome. One of my specialties has been is scientific knowledge and medical data curation and organization for precision medicine data, so I really appreciate what you've done here. I was about to embark on pulling together something like this for myself, friends and fa...
- Thu Jan 23, 2025 5:14 pm
- Forum: Getting Started
- Topic: Welcome!!!
- Replies: 352
- Views: 437938
Re: Welcome!!!
Hi Stavia, I just joined today. I'm a scientist by training (PhD, cell & molecular biology). I'm grateful to find a forum like this one after discovering that I'm an APOE4 carrier. I had the same question as the user below about 23&Me. I poked around on the site and figured out how to deter...
- Wed Jan 22, 2025 4:46 pm
- Forum: Getting Started
- Topic: APOE4 /4 conflicting information
- Replies: 23
- Views: 15830
Re: APOE4 /4 conflicting information
update! (perhaps naively) I am determined to be the % of APOE4 who may end up with amyloid plaque etc but no clinical symptoms. i am exercising daily, taking care of cholesterol and now sleeping (gummies). i found hope here and really read the report from Spain carefully and the reviews —biological...
- Tue Jan 21, 2025 11:54 am
- Forum: Prevention and Treatment
- Topic: Oura ring
- Replies: 12
- Views: 7944
Re: Oura ring
A little bit of history - the 1st gen commercial HRV monitors were bands placed around the chest and directly over the heart. As the technology improved, watches and wristbands were introduced. Now, the technology has improved and rings have been introduced. With that said, it is highly unlikely th...
- Mon Jan 20, 2025 6:02 pm
- Forum: Prevention and Treatment
- Topic: telling spouse of death
- Replies: 8
- Views: 3945
Re: telling spouse of death
Dad died last night. Mom has had AD for a long time. She knows me and my husband and remembers some things from long ago, but can't remember what she had for breakfast. She is not combative anymore. What is more merciful? To tell her that he died, and then she will have to be reminded over and over...
- Sun Jan 19, 2025 9:58 pm
- Forum: Our Stories
- Topic: Apoe 3/4 gene and white matter hyperintensities
- Replies: 2
- Views: 4932
Re: Apoe 3/4 gene and white matter hyperintensities
I am 48 almost 49. A quick recap of my story: a lifelong migraine sufferer had an MRI where multiple millimetric white matter hyperintensities were found . I have done so much testing and all they found is that I have one copy of the gene. So maybe these lesions came from the gene. I'm scared out o...
- Sat Jan 18, 2025 5:49 pm
- Forum: Getting Started
- Topic: New to forum: 4/4 with positive plasma pTau217
- Replies: 2
- Views: 2809
Re: New to forum: 4/4 with positive plasma pTau217
Hello everyone, Joined forum today. I am 65, 4/4, normal cognition (for now!), got my plasma pTau217 'positive' results yesterday with a value 0.82 (A test result >0.63 ng/L is positive and is consistent with a positive amyloid PET scan with 95% positive predictive value). My neurologist is setting...
- Tue Jan 07, 2025 4:02 pm
- Forum: Our Stories
- Topic: Question about Alzheimers smell
- Replies: 6
- Views: 7432
Re: Question about Alzheimers smell
https://www.sciencefocus.com/the-human-body/what-does-disease-smell-like Another article about different disease smells. Thanks for sharing these! I had forgotten reading about the wife who is a super-smeller and her help to researchers. The classic biomarker of Parkinson’s disease, which that woma...
- Tue Jan 07, 2025 3:15 pm
- Forum: Our Stories
- Topic: Question about Alzheimers smell
- Replies: 6
- Views: 7432
Re: Question about Alzheimers smell
New here bu have been reading some of your discussions for the past few years. My husband (just turned 40) is APOE4x1. His mother lives with us and has had Alzheimers since her early 60s (now 78) her mom had it as well and I think it goes back in the family quite a ways. While I try not to think ab...