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- Thu Apr 04, 2024 10:19 am
- Forum: Announcements and Events
- Topic: A heart-warming movie about FTD & Early-Onset Dementia
- Replies: 0
- Views: 23537
A heart-warming movie about FTD & Early-Onset Dementia
On Thursday, April 25 at 6:00 PM Eastern time, Mass General and the Massachusetts Alzheimer's Disease Research Center will have a short film that might be worth watching: Pedacito de Carne follows a young millennial Hispanic woman caring for her mother living with young-onset dementia, as both wome...
- Wed Apr 03, 2024 9:25 am
- Forum: Science and Research
- Topic: Huge list of therapies / drugs in the pipeline
- Replies: 9
- Views: 24616
Re: Huge list of therapies / drugs in the pipeline
Therapies in the pipeline. There are so many but few specifically targeted at apoe4/4 Short take: BCG, pertussis vaccines look interesting, valacyclovir. Can be done with no concerns about side effects. Also LX1001 apoe2 gene therapy and Trappsol Cyclo (Cyclodextrin) are of interest to me. Thanks f...
- Wed Mar 27, 2024 9:37 am
- Forum: Our Stories
- Topic: 24 and 4/4
- Replies: 7
- Views: 19026
Re: 24 and 4/4
Hi all, I’m really really sad to be joining this forum. I found out today that I’m 4/4 for APOE4 and have no idea where to start. I’m 24, just graduated college, I have no family history of dementia or AZ (I did lose my grandfather in his late 60s to a heart attack though, so there’s some cardiac b...
- Tue Mar 26, 2024 7:20 am
- Forum: Our Stories
- Topic: NEW LIKELY CAREGIVER HERE.
- Replies: 12
- Views: 22784
Re: NEW LIKELY CAREGIVER HERE.
Hi Nancy! I am following your advice and looking at joining the website. I know I am going to sound out of bounds, but the $75 monthly costs to locate the trained person in my area might be tough. I get that this is life or death. That is what also makes it somewhat astonishing that there is a fee ...
- Tue Mar 26, 2024 5:11 am
- Forum: Prevention and Treatment
- Topic: Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD
- Replies: 3
- Views: 14016
Re: Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD
Thanks for sharing this! Over the years I've wondered why clinical trial results were so unclear most of the time, compared to the earlier studies in animals or cell cultures, where the results are usually clear. Sample sizes, I suppose, and the fact that animals cooperate better, and can't drop ou...
- Mon Mar 25, 2024 9:05 am
- Forum: Our Stories
- Topic: NEW LIKELY CAREGIVER HERE.
- Replies: 12
- Views: 22784
Re: NEW LIKELY CAREGIVER HERE.
That is being considered as well. Thanks Not sure how to look. Know of anyone near 76001 which is Dallas/Fort Worth Texas? Thanks for the comment. Hi again, If you want to consider someone trained in the Bredesen protocol in the Dallas/Fort Worth area, you have a few options. You can use the search...
- Mon Mar 25, 2024 8:33 am
- Forum: Prevention and Treatment
- Topic: Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD
- Replies: 3
- Views: 14016
Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD
The newest issue of Alzforum has an article on the presentation of results from the open-label extension of the Lucidity trial of HMTM, a derivative of methylene blue, at the March 2024 AD/PD conference in Lisbon. Here's the article and an excerpt: TauRx Parses Subgroups to Make the Case for Methyle...
- Sun Mar 24, 2024 5:58 pm
- Forum: Our Stories
- Topic: NEW LIKELY CAREGIVER HERE.
- Replies: 12
- Views: 22784
Re: NEW LIKELY CAREGIVER HERE.
My wife was recently diagnosed with EOAL. Age 54, and height/weight lean and for the most part healthful. We were doing basic testing with a Neurologist over a few years and he leaned towards depression. Now at UTSW in which test results have confirmed. The lumbar tests resulted in high PTAU and a ...
- Fri Mar 22, 2024 11:18 am
- Forum: Getting Started
- Topic: APOE4/4 makes it to age 86!
- Replies: 10
- Views: 20876
Re: APOE4/4 makes it to age 86!
Bruxism is characteristic of very late stage ALZ which is consistent with her being on Aricept for about 8 years now. She was deemed "un-testable" for cognitive testing when we brought her in a few years ago. I'm curious if she's had a recent MRI of her brain...Given that your mom is a 4/...
- Thu Mar 21, 2024 11:14 am
- Forum: Prevention and Treatment
- Topic: The new P-tau 217 test is almost here
- Replies: 13
- Views: 60184
Re: The new P-tau 217 test is almost here
Hello - I am curious if anyone has any additional information on Lucent's p-tau 217 test? It appears to be available through a physician's order? Not direct to consumer. Please see link? https://www.lucentdiagnostics.com/about-lucentad/ Hi Sheri, I'm not directly familiar with the Lucent AD p-Tau 2...