Mould / CIRS Patient - Treatment for lateral ventricles?

[DizzyDizzy]

Hi,
I'm a mould / CIRS patient who has made something of a good recovery. I increased my hippocampal volumes from the 9th to 69th percentile and total brain volume from the 6th to 45th percentile.

I did not make much of a dent in shrinking enlarged lateral ventricles: 97th percentile. I have looked and not found much in terms of success stories for shrinking ventricles and also not found much in the scholarly literature for treatment either.

Does anybody of either? Either patient success stories or specific treatments with regards to shrinking enlarged ventricles?

Thanks!

[Laurie Sotro]

Hi,
I'm a mould / CIRS patient who has made something of a good recovery. I increased my hippocampal volumes from the 9th to 69th percentile and total brain volume from the 6th to 45th percentile.

I did not make much of a dent in shrinking enlarged lateral ventricles: 97th percentile. I have looked and not found much in terms of success stories for shrinking ventricles and also not found much in the scholarly literature for treatment either.

Does anybody of either? Either patient success stories or specific treatments with regards to shrinking enlarged ventricles?

Thanks!

Hello!

My name is Laurie and as a Support Team Intern, I would like to welcome you to this forum; we are so glad you joined us! You have found a very informative and supportive community here.

Thank you for sharing your information with us. I would like to commend you on the recovery you have made in both hippocampal volumes and total brain volume; you have achieved incredible improvements! It must be very satisfying to know your dedication and hard work in making these improvements was realized by the huge percentile increases. I encourage you to not lose sight of these tremendous gains as you continue to search for additional help with the ventricles.

As you continue your reseach, may we offer this 2023 article from the Journal of the American Medical Association (open access): Characterization of Brain Volume Changes in Aging Individuals With Normal Cognition Using Serial Magnetic Resonance Imaging: https://jamanetwork.com/journals/jamane ... ct/2806488
Here is an excerpt that may spark your interest in reading it:

"In this large-scale prospective cohort study, we followed up with a sample of adults without dementia using serial MRI scans over the long term to provide spatial and temporal profiles of age-dependent changes in the brain without known neurologic conditions. To our knowledge, this study included the largest number of participants (n = 653) who underwent annual brain MRI examinations for a period exceeding 10 years, making it the most detailed longitudinal follow-up study of brain structure changes in normal aging. This allowed us to characterize atrophy rates and their changes (acceleration) with age and to reveal population variability in atrophy rates. Our findings revealed considerable individual variability in the rates of decrease, even in healthy middle-aged individuals. Defining the pattern and rate of these changes is crucial to understanding the long-term processes of various neurodegenerative disorders."

As a new member here to our forum, you may have already noticed just how robust it is with various content and so many amazing areas to check out. If I may, I would like to highlight for you a few areas of interest.

The How-To Guide includes topics such as navigating the forum, private messaging, and searching. One great tip is using the quote (") button when replying to a specific post. Using the button will automatically alert that member of your response.

You can browse a wealth of information in both the Wiki and also the Primer , which is a detailed and informative resource written by a practicing M.D. with ApoE4/4.

You may also be interested in learning about other members journeys or even sharing your own story with us, and we welcome you to do so! The encouragement and support found in these stories are some of our members favorite things to read through. If you haven't already, feel free to check out this link:
Our Stories.

In closing, may I again recognize the incredible improvements you have made, keep up the amazing work!

Welcome aboard! Please reach out if you have any further questions!

Kindly,
Laurie Sotro
Support Team Intern