Alzheimer's: why no huge anti-AD movement?

Vision, strategy, service, and activism. Web and social media planning and technical discussion.
User avatar
Gilgamesh
Contributor
Contributor
Posts: 1711
Joined: Sat Oct 26, 2013 11:31 am
Location: Northeast US mostly
Contact:

Alzheimer's: why no huge anti-AD movement?

Post by Gilgamesh »

It is a bit odd that there isn't a bigger "movement" to stop Alzheimer's....

http://www.nytimes.com/2014/05/18/nyreg ... demic.html
User avatar
Julie G
Mod
Mod
Posts: 9187
Joined: Sat Oct 26, 2013 6:36 pm

Re: Alzheimer's: why no huge anti-AD movement?

Post by Julie G »

Such a great analogy; spot on. Why no greater uproar? Ageism, sexism, resignation, the notion that dementia is a normal part of aging?

I found it encouraging that over 700 people, from all over the world, listened in on the Howard Federoff teleconference call today. People DO care...
SpunkyPup
Contributor
Contributor
Posts: 272
Joined: Wed Oct 30, 2013 5:28 pm

Re: Alzheimer's: why no huge anti-AD movement?

Post by SpunkyPup »

one of the richest Canadian family foundation just gave $50 million to pursue research that is likely to give a quicker resolution.
Just heard a CBC radio series on 'As it Happens' moderated by Anna Maria Trimonti I believe which is likely on USA PBS radio about Alz. There is a large support network that is also increasing.

Americans are going to get it soon and start a like movement.
User avatar
Gilgamesh
Contributor
Contributor
Posts: 1711
Joined: Sat Oct 26, 2013 11:31 am
Location: Northeast US mostly
Contact:

Re: Alzheimer's: why no huge anti-AD movement?

Post by Gilgamesh »

Julie, yes, ageism and (since women are more often victims) sexism; but also the absurd idea that it's a normal part of aging.

Spunky, I think you're right. Actually, what we need is not more people giving money because they're getting diagnosed with AD, but more people taking (soon to be available, or more available) tests of future risk! People should be scared while there's still time to act, and donate!

GB
User avatar
SusanJ
Senior Contributor
Senior Contributor
Posts: 3058
Joined: Wed Oct 30, 2013 7:33 am
Location: Western Colorado

Re: Alzheimer's: why no huge anti-AD movement?

Post by SusanJ »

Maybe too much faith that research will provide a cure in a pill?

Choosing not to "hear", or feeling invincible (it won't affect me)? Think about how many people are overweight/obese and have heard all the warnings about the toll it takes on health yet do nothing to change.
RedNailz
Contributor
Contributor
Posts: 83
Joined: Wed Jan 29, 2014 4:25 pm

Re: Alzheimer's: why no huge anti-AD movement?

Post by RedNailz »

Every time I see pink for breast cancer awareness, I think about the lack of an anti-AD movement. I think it is, as Susan mentioned, the feeling of invincibility. No one wants to recognize that this could happen to them, or to their family members.

I believe the disease IS becoming more visible, with less stigma, which will hopefully lead to more funding. Whatever you may think of Seth Rogan, he gets credit for raising awareness that AD is not just for "old" people.
4/4
Gina99
Contributor
Contributor
Posts: 117
Joined: Thu Oct 31, 2013 7:36 am

Re: Alzheimer's: why no huge anti-AD movement?

Post by Gina99 »

Yup. Sister diagnosed with AD and no one can say the word Alzheimers except me. Feels like the 60's when we werent aloud to talk about cancer.


Sent from my iPhone using Tapatalk
Orangeblossom
Senior Contributor
Senior Contributor
Posts: 802
Joined: Tue Nov 07, 2017 10:11 am

Re: Alzheimer's: why no huge anti-AD movement?

Post by Orangeblossom »

Old post I know, but I found this site and wondered if might be of interest

Women's Alzheimer's Movement http://thewomensalzheimersmovement.org
User avatar
KellyS
Contributor
Contributor
Posts: 89
Joined: Thu Jan 04, 2018 6:53 pm
Contact:

Re: Alzheimer's: why no huge anti-AD movement?

Post by KellyS »

It's neat to see this post come alive again after four years! I read it and thought, "Wow, you're right" - even in this day and age when the statistics have become even higher than ever before, it many communities the thought process is that of "Well, it just happens.". I think Dr. Bredesen's work has helped tremendously in turning the tide, though (at least I hope it has.)

Kelly
Holistic Healthcare Practitioner
Functional Medicine Health Coach - Candidate
apoe4.info intern
Berri
Contributor
Contributor
Posts: 79
Joined: Mon Jan 07, 2019 3:06 pm

Re: Alzheimer's: why no huge anti-AD movement?

Post by Berri »

I have wondered about this, too. The Alzheimer's organization, https://www.alz.org/, is attempting to remedy the situation but! they make no mention of Dr. Bredesen. What an injustice! I propose that many of the members of APOE4 write to them and to newspapers and TV stations. Demand that they read and then publicize Bredesen's work. He deserves our undying support (no pun intended). I did just that today. Do your part. This thread started in 2014, people. We are the ones who should be growing the anti-AD movement. LET'S GO!!
Post Reply