a1iendays wrote: ↑Thu Nov 17, 2022 1:23 pm
Hello everyone! My name is Natalie and I am 24 years old. As of Tuesday I have found out that my 56 year old mother has stage 5 early onset Alzheimers. I have also taken a 23andMe test and carry two variants of APOE4. These last two days have been nothing but tears and obsessive research on how I can delay this for myself and who can I go to for more information. I thought a good place to start would be to find a place where others are in a similar situation. I am very intellectually curious, and this forum caught my eye with its emphasis on research for APOE4. If anyone has any books recommendations or videos please let me know and I am so grateful to find this forum!
It can be quite overwhelming to get the news that your loved one has Alzheimer's Disease (AD) and that you cary the ApoE4 variants. I remember the worry and concern I experienced when my mother was diagnosed and that I, subsequently, cary one variant of the allele. You have found a very supportive and knowledgeable community in the ApoE4 Info forum. I am sure there will be plenty of members who have specific recommendations for books, articles and treatments. This information may, in itself, be overwhelming. I would advise you take your time to assess and choose the options that resonate with you and/or your mom. Those may be very different. Your curiosity and quest for knowledge will serve you well.
As a welcome intern, I'd like to make sure you are aware of some useful resources with which to begin your research. First of all, the Primer
is written by a member physician who carries two copies of the APOE-ε4 allele. It offers accessible science background and prioritized sensible preventative measures. There is also an accompanying glossary
for the primer.
Secondly, the WIKI
is a searchable resource that links to various topics concerning AD. I'd recommend starting with the topics What You Need to Know...
and Just Found Out You're an E4 Carrier
Finally, in a community such as this, we can learn a lot from the experiences of other members. You can find that information in Our Stories
. You are also most welcome to add your own story here, as well.
One other thing, if you're a Facebook user, take a look at our Facebook page
. Many research studies and scientific data are posted there. You may find that useful as well.
Regardless of the information you find here, I hope you will find the support you need. I encourage you to post any questions you may have and please feel free to reply to this message, as well.
Best wishes on your journey,