APOE 4/4 - Dizziness that won't go away

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Re: APOE 4/4 - Dizziness that won't go away

Post by NF52 »

cdaniel wrote: Fri Nov 17, 2023 8:31 am
NF52 wrote: Wed Nov 15, 2023 5:22 pm
Any chance your doctors would refer you for an MRI to rule out causes that might not show up on a CT scan? I'm not a neurologist, so can't really speak to what those would be, but edema that some people experience in anti-amyloid clinical trials has been shown to cause dizziness and appears as an "imaging abnormality" on MRIs, hence the name ARIA-E for Amyloid-Related Imaging Abnormality.
Hi, Nancy! Thank you for your response. An MRI is the only thing that hasn't been done yet. I'm not sure how to elevate the issue to them to where they agree to go down that path after a clear CT. I have another appointment coming up, so I'll see what they think. It does concern me that damage is happening/happened since it has been so long without a resolution.
One more suggestion: Start keeping a diary or notes of time of day, any specific events just before (ate a meal, woke up, turned suddenly etc) and whether the dizziness is a feeling of spinning that makes you actually stumble or reach for support, or is more a sense of the room spinning, or feeling like you're on a boat or rollercoaster. Also how long the episode happened, whether it started with a headache, occurred before or some time after a headache. If so, where was the headache located and what type-dull, sharp, pounding, full-feeling). What, if anything helped the dizziness lessen or end: lying down, being in a quiet room, closing your eyes, deep breathing. Also the old "on a scale of 1-10, how was this episode in severity and length?'

I don't claim to know if any of that will help narrow the cause or confirm Meniere's. But a differential diagnosis is easier with specifics.

It's possible that no "damage" is happening and your vestibular system decided to go on hiatus for a while. If so, I hope it soon decides to return to work!
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Re: APOE 4/4 - Dizziness that won't go away

Post by Cvd »

My mom had vertigo for a few months after getting Covid, and said the Epley maneuver which I found on YouTube really helped. None of her doctors had mentioned that Benign paroxysmal positional vertigo (BPPV) was a common type of vertigo, so maybe this could help you as well- https://m.youtube.com/watch?v=o4GV-EbnMfI
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Re: APOE 4/4 - Dizziness that won't go away

Post by TCHC »

Hi cdaniel

You've had lots of suggestions here, and I know you said the Drs said it wasn't inner ear, but I just want to check, did you do an Epley Manoeuvre? Did it make any difference?

If you haven't yet, get someone to hold a pen in front of your eyes and move it from side to side, while you follow it with just your eyes. They might see a wobble, a juddering of your eyes at a certain point as your eyes are moving.

If so, (and no harm trying even if not) look up the Epley Manoeuvre on the internet and get someone to help you do it.

Let us know how you get on and if you find your cause.

Good luck!
TCHC - Lindsey Byrne - The Cognitive Health Coach - UK
Functional Medicine Certified Health Coach (FMCHC)
Certified Re:CODE 2.0 Health Coach
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