New Member

[Richard W.]

Hello everyone. My name is Richard and I have recently learned I possess an APOE 4 allele and have been diagnosed with early Alzheimer's. Local geriatric doctor who diagnosed me did not have much to offer other then a sketchy sounding drug trial that she seemed overly anxious to get me into. Been reading Dr Bredesen's book and would rather go that way with treatment. Looking for a Connecticut doctor that can work with me on that protocol.

Also I have learned my blood lead level is elevated somewhat. Very difficult to find a local doctor who know much about that either. Would be interested in comments from anyone who has wrestled with that.

thanks
Best of luck to all.
Richard

[JulieMorris]

Hello everyone. My name is Richard and I have recently learned I possess an APOE 4 allele and have been diagnosed with early Alzheimer's. Local geriatric doctor who diagnosed me did not have much to offer other then a sketchy sounding drug trial that she seemed overly anxious to get me into. Been reading Dr Bredesen's book and would rather go that way with treatment. Looking for a Connecticut doctor that can work with me on that protocol.

Also I have learned my blood lead level is elevated somewhat. Very difficult to find a local doctor who know much about that either. Would be interested in comments from anyone who has wrestled with that.

thanks
Best of luck to all.
Richard

Hi Richard-

Hello! I'm a support team intern, and I'd like to welcome you to this site! You have found a very supportive community here, and we appreciate you posting. It's sounds like you've been diagnosed with early or "mild" dementia. I certainly understand your hesitance in taking a new medication, and I can tell you that my mother is doing ReCODE (Bredesen's program), and has made great progress. Dr. Bredesen's program has had significant success in reversing mild dementia. If you need help finding a provider who is trained in his approach, let us know.

You commented on your lead levels. I, too, have had high lead and had to go through a detox protocol for it. Having too much lead in your body can negatively affect your brain, so you might consider getting that further assessed and treated, as that could be a factor. You might consider asking your doctor to order a PrecivityAD2™ test, in order to confirm that the cause of your cognitive issues are the amyloid plaques and tau tangles that are biomarkers of Alzheimer's. In recent clinical trials, doctors who used both clinical symptoms and the blood test for amyloid plaques sometimes ruled out Alzheimer's and were able to look at other possible causes for memory changes.

If you haven't already, it would be a great idea to first take a look at our Primer. It is an incredible resource of information about the biochemistry of ApoE4. It offers researched-based prevention strategies and was written by a practicing M.D. with ApoE4. Do not become overwhelmed with all the information. Sometimes it is best to slowly read through it, decide which section resonates with you, and focus on that area first. Remember that small changes can make a huge difference in brain health.

The How-To Guide will help you learn how to navigate this site. It includes topics such as navigating the forum, private messaging, and searching.

You can find other members' experiences in Our Stories. Sometimes reading the stories of others helps us realize that we are not alone.

I'm so glad you have joined us on this site. Please feel free to reach out anytime with questions or if you just need support. You are not alone. We are here for you.

Take care,
Julie

[JD2020]

Also I have learned my blood lead level is elevated somewhat. Very difficult to find a local doctor who know much about that either. Would be interested in comments from anyone who has wrestled with that.

Hi Richard, welcome. I have some experience with Hg toxicity. It is amazing the resistance by mainstream docs to recognizing heavy metal toxicity and treating it. The integrative docs have no problem with it, so that might be a starting point for you. Where I live, none take insurance, just FYI. I chelated with DMSA for a good portion of 2006 and must chelate a couple of days every 3 - 4 weeks to keep my particular health issue at bay. I get the DMSA at a compounding pharmacy.

The amazing thing in 2006 was that after the first month of chelating, my very serious insomnia subsided, and I was able to get off Ambien, which I was taking several times a week. My mood improved. Also, I had these weird skin tags on my tummy and underarms, and those all went away. Hopefully as you reduce your lead load, you will see improvements in your health.

[TCHC]

Hello everyone. My name is Richard and I have recently learned I possess an APOE 4 allele and have been diagnosed with early Alzheimer's. Local geriatric doctor who diagnosed me did not have much to offer other then a sketchy sounding drug trial that she seemed overly anxious to get me into. Been reading Dr Bredesen's book and would rather go that way with treatment. Looking for a Connecticut doctor that can work with me on that protocol.

Also I have learned my blood lead level is elevated somewhat. Very difficult to find a local doctor who know much about that either. Would be interested in comments from anyone who has wrestled with that.

thanks
Best of luck to all.
Richard

Hi Richard

I would definitely recommend you find an Apollo/Re:CODE practitioner near you to get help with the lead at very least! I had a client with heavy metal toxicity, it's not easy to release and you will need support to make sure it's released gently, slowly enough for you to bind it and eliminate it. You don't want it being released and recirculated and causing more problems!

Really good luck with your search, do let us know how you get on!

Lindsey

[Tincup]

Also I have learned my blood lead level is elevated somewhat. Very difficult to find a local doctor who know much about that either. Would be interested in comments from anyone who has wrestled with that.

This is about a program I've investigated very thoroughly, but have not executed as I don't have acute toxin issues and also having the time to devote to executing.

The point of this program is to use an escalating dose of flushing niacin specifically timed together with exercise, sauna and binders.

Niacin will inhibit fat lipolysis (coming out of fat cells) for a few hours and then will have rebound lipolysis. The idea is to time the exercise prior to the sauna. Then time the sauna to coincide with the rebound lipolysis. This will allow the percentage of sweat being sebaceous sweat to increase >10% of total sweat from around 1% (I'm making up the numbers from memory - refer to the program for more accurate numbers). Binders are also consumed to carry the toxicants out of the digestive system for those that are circulating in the body. The toxicants addressed include heavy metals as well as xenobiotics (stored hydrocarbon chemicals).

This program was initially developed by David Root MD for use in occupational medicine. When Dr. Root retired, his son, Dan (not a doc) continued to work with it. It can be done on your own and Dan will also do remote consulting to help you through it.

Website

Facebook group

Dan has frequent webinars announced on FB site and (I think) on webpage.

Book

If you get the book & take a copy or screen shot of Kindle version and send to him via this page, he’ll send an updated PDF for free.

Dan also has a less intense protocol, which can be done a day at a time, not over a 30 day block, which is in this PDF:

The Niacin Flush Sauna Detox.pdf

[NF52]

Hello everyone. My name is Richard and I have recently learned I possess an APOE 4 allele and have been diagnosed with early Alzheimer's. Local geriatric doctor who diagnosed me did not have much to offer other then a sketchy sounding drug trial that she seemed overly anxious to get me into. Been reading Dr Bredesen's book and would rather go that way with treatment. Looking for a Connecticut doctor that can work with me on that protocol.

Also I have learned my blood lead level is elevated somewhat. Very difficult to find a local doctor who know much about that either. Would be interested in comments from anyone who has wrestled with that.

thanks
Best of luck to all.
Richard

Hi Richard,

I think we might not have addressed your main question of how to find a doctor in the Connecticut area who is familiar with the Bredesen protocol and also with elevated levels. Here are two resources that may help:
ApoE4-Aware Healthcare Practitioners is a list of some practitioners who have asked to be included on our site. One of them is a doctor in CT, but his website does not currently list any affiliation with the Bredesen protocol or Alzheimer's treatments. Depending on where in CT you live, you may also want to look for doctors in NH, NY or MA.

Searching for a Healthcare Practitioner, has the Apollo Health website where you can get information about Bredesen-trained doctors, and suggestions on how to use a site for functional medicine doctors trained in the protocol.

You can also consult with an ApoE4-Aware Health Coach who can consult online about diet, exercise, sleep, stress reduction--and let YOU set the goals.

It can be a rollercoaster to get a diagnosis of early-stage Alzheimer's. I happen to have friends with that diagnosis who still play in local bands, still preach at churches, still travel to places they love, and most of all, tell friends and family about the diagnosis, which helps to reduce the stigma. People with Alzheimer's are not "suffering from Alzheimer's" or "a patient".

I talked with someone from Wales who said "I live with my wife; Alzheimer's is just along for the ride"--to a room of about 1000 people at a conference in Amsterdam, far from his home. He got involved with support groups and advocacy groups to support men like him

Whatever you decide, I hope you find time to do what brings you joy and puts Alzheimer's in the backseat, not the driver's seat.

Nancy